health

Second opinions

Posted in health on September 12th, 2009 by Elizabeth – 2 Comments

After getting diagnosed, some people asked if we were getting a second opinion. Our thoughts were no.
For one, is another opinion going to tell me I do not have cancer? And if they did, would we believe them? And two, we were driving the treatment decisions. We decided for a bilateral mastectomy. Dr. Tabesh had not even finished describing a lumpectomy before I said “No – they are both coming off.”

So really what would a second opinion give us. Maybe peace of mind but we really liked our physicians and a new one may not be as trusted by us.

Brendan brought up the idea of a second opinion prior to this last visit with Dr. Tabesh. And then after our visit, we remembered why we don’t need a second opinion. She is great. Everything she says she thoroughly explains and it is in line with the copious research I have done and the experiences of other family members. Also, she will answer any question we have even if it is weird (those usually come from me). She is a big proponent of personal contact and always calls back when I call in questions or if she just wants to check in with us.

Sort of good news…

Posted in health on September 11th, 2009 by Elizabeth – 2 Comments

Just got back from the oncologist and discussed treatment options. And everything is pointing to Tamoxifen; however they want to look at the actual genetic make up of the tumor to see if there is a high/medium/low chance of recurrence – Oncotype DX. If it is medium or low, treatment is tamoxifen, high is chemo. Basically the reason for further testing is that it is a grade 2 tumor which is a bit of a red flag but not very alarming. And since the doctor has the technology to look into it further she is suggesting it.

The good news is was that the doctor was optimistic and upbeat. She typically is a bit clinical and has a GREAT poker face – never saying that it is likely to be this or that. But she seemed to think that tamoxifen is the likely outcome. We will know in about 10-15 days…

Oncologist Appointment Today

Posted in health on September 11th, 2009 by Elizabeth – 1 Comment

Today is the day we finally go to the oncologist to discuss the pathology reports and next steps.  Next steps meaning treatment plan (hormonal, chemo, etc).  We are hoping the better than expected news continues today and to the end of next week.

75%

Posted in health on September 8th, 2009 by Elizabeth – 8 Comments

3 of the 4 drains were removed. The next one is coming out in a week.

First Post-Op Visit

Posted in health on September 8th, 2009 by Elizabeth – 1 Comment

Today is our first visit to a doctor since the hospital. Hopefully, everything is still healing nicely and the drains will be taken out.

Overall review of the Brigham and Women’s

Posted in Boston-area, health on September 5th, 2009 by Elizabeth – Comments Off

According to US News and World Report, the Brigham is 10th in country as an overall hospital (it was 25th for treating breast cancer) and we couldn’t agree more.  Both Brendan and I were mightily impressed with the hospital.

Visitor Waiting Area: The waiting area was incredible.  Brendan had a pager/light thing (the thing you get when you are at a restaurant to let you know when your table is ready) that would alert him when a doctor called or there was new information.  They also took his name and phone number down and my actual surgeons called his cell phone to discuss what was finished and any information that could be provided.  Brendan’s fear was that he would be walking around not knowing what was going on but that was not the case.  In fact, when he went to the desk at one point to inquire abou the surgery he was told “The first incision was made at 11:02.”  The area also has free snacks, coffee, wifi, papers, and TV.

Surgeons: I have talked about my surgeons in previous posts but I cannot stress enough how much I love them.  Dr. Guo and Dr. Carter were great the morning of the surgery and during my entire stay.  Dr. Carter went out of her way to check in on me every day even on the days she was seeing patients at her Quincy office.   Both explained everything in great detail and never minded answering our questions.  More importantly, we never felt like we couldn’t ask anything of them. And as far as we know – they both did terrific work.

Nurses: I loved all of my nurses.  It was great to get to a regular room because we got to have some repeats in terms of nurses.  These people had great bedside manners and were very patient with me when I needed help getting in and out of bed.  They also were great in terms of deciding what to eat.  Those first few days I was hesitant to eat anything but they had great suggestions and made sure that I ordered my meals.  They also took great care when administering the dreaded heparin shot and I think felt bad.  The last few times the nurse knew to wake Brendan up if the shot was coming.  What I also liked is that they weren’t afraid to joke around with us because as most of you know, Brendan and I can be somewhat sarcastic at times.

Food: I had an expectation of the Brigham’s food from Larry.  He said he and his wife looked forward to the room service when they delivered their children.  So I was expecting some good stuff.  And it was good.  And you could order anything on the menu at any time of the day.  It was like a diner.  I didn’t venture into steak tips land but I loved that I could eat on my schedule and have a wide variety of options.

Accommodations: The ICU room was okay and I barely remember it.  But I do remember that the ICU is noisy.  Everyone talks at all hours of the day in the ICU.  My regular room was much quieter and was like a hotel.  And I am not joking.  We had room for a pull out chair for Brendan, a flat screen tv, mini fridge, bathroom and right outside the room was a kitchen area for our use.  The hallways were a nice carpet for when I walked around the floor.

Overall, if you need surgery – I recommend the Brigham.

Could it be?

Posted in health on September 5th, 2009 by Elizabeth – 5 Comments

Could it be that my throwing up every other day pattern is no more?  According to that schedule, I should get sick today but instead I feel fine.

One thing we did change was just waking up and taking my pain meds in the middle of the night.  I now have some bread or crackers to ensure that I am not taking the meds on empty stomach.  I don’t know if that was the issue but we have been puke free for a few days now.  Not even nauseous.  Yay!

Now we have to iron out the BM issues (minor but still an issue but I will save that conversation for another day).

Drains

Posted in health on September 4th, 2009 by Elizabeth – 2 Comments

I have four drains and I want them out. All of them. They are a hindrance to my life. I would be out and about more if I didn’t have them. I have my first follow up appointment on Tuesday and hopefully they will begin to come out. I know at least one will be taken out.

Also another milestone, I am sleeping almost fully supine. This is amazing since I am normally a stomach sleeper.

Results are back.

Posted in health on September 3rd, 2009 by Elizabeth – 5 Comments

Left side is clear. Lymph node clear. Tumar size = 1.0 centimeter

Tumor Stage = T1B which the doctor said has a very good prognosis.  We still have to get other information for the overall cancer stage.

Yay!

Now we wait for a week and met the 11th with the oncologist. Hopefully, good news with treatment path.

No results so far

Posted in health on September 2nd, 2009 by Elizabeth – 2 Comments

Dr. Carter left me a message as she wanted to check in and see how things were going. Also she wanted me to know that the pathology report is not yet in but she isn’t surprised given that it is a lot of tissue to go through. Fingers crossed that these results are as good as all of the others thus far.