Quality of Life Study

I was recently sent an invitation to participate in a research study on the quality of life of breast cancer patients under the age of 40.  It is being conducted in the Dana Farber Center with Ann H. Partridge as the principal investigator (PI as it is known in the biz).  She has published some really interesting research including a study about whether you should share clinical trial results with patients if the results are bad.  Like I said, interesting.

I will be providing a blood and tumor sample.  Then I will fill out a survey (after judging the questions first) every 6 months for 3 years then yearly for another 7.  Yes it is a 10 year commitment.  I can drop out at any time in case I get cold feet.  Topics will be family planning, treatment, marriage, sexuality, socializing, all the facets of life.

I think it will be interesting and makes me feel like I am helping shape future programs that may be offered to next generation.  I am awesome.

This entry was posted on Wednesday, August 12th, 2009 at 8:41 pm and is filed under health. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.

  1. betty says:
    August 13, 2009 at 11:20 am

    Better you than me-I hate doing surveys! And yes you are ‘awesome’

  2. Papa Dan says:
    August 13, 2009 at 1:33 pm

    I think it’s a great idea. It is through research and study that maybe someday this will be licked for all women.

  3. Teresa says:
    August 14, 2009 at 12:31 am

    That’s really neat. Good for you for participating!!!

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